Dad takes steps to fight disease
Thursday, August 9th, 2012
Issue 32, Volume 16.
The third annual Take Steps, Be Heard for Crohnís and Colitis will take place from 4 to 7 p.m. at Bel Vino Winery in Temecula.
Clausnitzer, knows firsthand how difficult living with this ailment can be. For the past 11 years, he has lived with the painful symptoms of Crohnís, and was only diagnosed three years ago. Known collectively as inflammatory bowel diseases (IBD), Crohnís disease and ulcerative colitis are painful, medically incurable illnesses that attack the digestive system.
Crohnís disease may attack anywhere along the digestive track, while ulcerative colitis inflames only the large intestine (colon). Symptoms may include abdominal pain, persistent diarrhea, rectal bleeding, fever, weight loss, and fatigue. Many patients require hospitalization and surgery. One in 200 people suffer from Crohnís disease or ulcerative colitis, with as many as 150,000 under the age of 18. Most people develop the disease between the ages of 15 and 35.
Clausnitzer, 31, had difficulties because in his case, inflammation was not always apparent, despite various trips to the doctor for colonoscopies.
"When they do a colonoscopy with a camera to take pictures, there has to be an active inflammation for the doctors to realize something is wrong," he said. "Sometimes I would have a flare, sometimes not."
The inflammation symptoms truly began to impact Clausnitzerís life.
"It was really embarrassing, and people donít want to talk about it. Itís hard to deal with," he said. "Itís really a debilitating disease that affects how you think about things. Before I was diagnosed, it would control everything. I was afraid to take trips, and would plan things around bathroom stops. My wife and I took a cruise, and I couldnít get off at the ports."
Visits to the doctorís office seldom provided the help that Clausnizter needed.
"When I would go to the doctorís, they would say they didnít know what I had," he explained. "They thought I had some kind of bug or virus that was causing the symptoms. They said certain things werenít [the cause] because of blood tests."
Finally, Clausnitzer found a doctor who discovered that he had multiple inflammation points in his colon.
"He said he could see my problems, but didnít know enough about Crohnís, and referred me to a doctor at UCSD that specificallydeals with Crohnís patients," said Clausnitzer. "He steered me in the right direction."
Despite having discovered what was causing the ailment, there is no cure that completely eradicates Crohnís; medication can only help take care of some of the symptoms.
"Itís one of those things where you just want to achieve remission," said Clausnitzer. "For a little while, everything will heal up, and then I will have flare ups and go backwards. Itís kind of great at times and horrible at other times."
Currently, Clausnitzer is on a medication that he self-injects every two weeks. Prior to that, he has taken two other types of biologic medications that have not worked for him.
As the father of a 14-month-old son, Clausnitzer understand that he must be involved in raising awareness for this illness. He became involved with Take Steps and the Crohnís and Colitis Foundation last year after his sonís birth, "in hopes that no future generations will have to suffer like I have from this disease." Knowing the struggles and challenges of living with a debilitating, unpredictable digestive disease, Clausnitzer is participating in Take Steps with the hope to inspire others and raise awareness.
"I feel like a lot of people still donít know what Crohnís is," he said. "Itís a personal thing, and people donít normally talk about it. I want to share with the community to explain how it affects people; they think itís like having diarrhea once in a while. I decided that I really needed to do something so that if my son develops Crohnís, there is a cure."
Clausnitzer will join thousands of people this summer, at 158 walk sites across the country, to join the fight against Crohnís disease and ulcerative colitis. Celebrating its fifth anniversary, Take Steps has raised over $30 million for research and patient support services. Their goal is even more ambitious for 2012. They are committed to transforming the lives of those impacted by these diseases and leading them to a brighter future through well-funded, cutting-edge scientific research.
"[Clausnitzerís] story is a reminder of just how critical the funds and awareness raised through Take Steps really are," said Laura Pinner, walk manager. "Surprisingly, these diseases are not very well known, yet they take a tremendous toll on peopleís lives. We are fortunate to have patients like Travis who use their personal story to raise awareness about digestive diseases."
To take part in helping raise awareness about Crohnís disease or colitis, register to walk with Take Steps Temecula at www.cctakesteps.org/temecula. For more information on Crohnís or colitis, visit the Crohnís & Colitis Foundation of America website at www.ccfa.org, or call (888) 694-8872.
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